It's been a horrid two weeks here. I am down with pneumonia yet again for the third time in 6 months and am not happy! I feel like crap! I am on high powered antibiotics yet again and am feeling better to some degree physically.
Emotionally right now I am in shock..our neighbor's daughter in law was found dead by her husband when he came home from work morning before last. She was only in her 20's and the cause of death is not known yet but we all have our suspcions that she may have accidently overdosed on something. My heart aches for her husband who we have known since he was a little boy and for the 3 children she leaves behind. They also live where I saw their back door from our front door so knew them fairly well. Please say some prayers for their families! The whole neighborhood as well as the families are shocked and devasted by her death.
I had a go around with paypal this morning as yesterday when i checked my acct there is a double charge listed from my one monthly payment and the seller says they only requested payment once and yet pp shows it twice and pp refuses to do anything until after the 5 days authorization expires and then they will escalate if need be. Now when the seller says they didn't and believe me I trust the seller as have dealt with them almost 8 years now with no problem i would say someone needs to check on it but noooooooooo nobody seems to give a rats butt that my money is absent! Luckily it doesn't make my account in the negative but still it's money I use for my prescriptions, website payments etc and i don't want it messed with!
To top it all off this week I was purchasing from several different scrap stores and had issues with two of them that I couldn't get my downloads or got a wrong download! Grrrrr! I know these things happen and both stores have quickly been working on the problem but it is frustrating when i get an idea and then can't implement it because i can't get the basic portion i want to work with ugh.
So that is my lovely two weeks ick ick and ICK! It's still snowing here and only about 20 degrees and that sucks!
On a SUPER DOOPER NOTE i got a surprise package in the mail from my brothers and sisters when they were together for my one brother's birthday..they had taken time to make an old fashioned family recipe called Dutch Loaf which is a bread loaf made with cardimom, muscat raisins and a bunch of other delightful things like cinnamon and sugar! They safely had wrapped upa loaf and mailed it to me! I was in heaven and as I was feeling so icky it just hit the spot to make me feel comfort! I LOVE my brothers and sisters for thinking of me when I was not able to be there even more for sending me some! I adore them all if you haven't guessed but just wish I did not live such a distance from them or that I could travel more often. I know my grandfather would be smiling down on them as he was the one who always made the Dutch and it was a labor of love on his part every year at Christmas time. That sliced in thin slices, buttered along with a wedge of extra sharp cheese is one thing I remember my daddy snacking on when he came to stay! Better than chicken soup for this old sick gal!
Friday, February 20, 2009
Tuesday, February 10, 2009
Couple of Goodies over at Digitals
Added some freebies to the bonus download section at Digitals! It's free to join so go visit us there! You need to register to use the download section!
Funny Valentine Addon Freebie(matches new kit in the store)
http://digitalscrapbookpages.com/galleria/showphoto.php/photo/87435
Funny Valentine Addon Freebie(matches new kit in the store)
http://digitalscrapbookpages.com/galleria/showphoto.php/photo/87435
Love"Drops"
http://digitalscrapbookpages.com/galleria/showphoto.php/photo/87996
Saturday, January 31, 2009
Steeler Ladies put your hands up!
"Steeler Ladies" is a parody of Beyoncé's "Single Ladies"
conceptualized and written by Christine Nangle, co-written and performed by Addi Twigg, recorded and produced by Sean G. Donaldson.
As heard on B94, Kiss FM and WTAE
The lyrics:
All the steeler ladies (7x) Now put your hands up
I wear black and gold - don't fit your mold - of what a lady should be
I live football, I yell at bad calls, wear Dad's Bradshaw jersey
I was raised this way, know every play, don't get me on the offensive
Look at me now, got my terrible towel, don't care if it's 3 degrees
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
Here we go, oh oh ohhh oh, oh oh, oh oh oh (2x)
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
Yes we can, we got Big Ben, Farrior, Miller and Reed
Holmes & Hampton, you know Tomlin came prepared to lead
Hines Ward grinnin', Willie spinnin', Lebeau is on a mission
Polamalu is gonna come through with another Super Bowl trophy
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
Here we go, oh oh ohhh oh, oh oh, oh oh oh (2x)
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
Here we go, oh oh ohhh oh, oh oh, oh oh oh (2x)
Don't you know we are champions of the world- see history unfurl
what we are plus what we were, makes us Pittsburgh
We're the team that takes the lead and makes you believe
in the destiny and the legacy of the Steel City and beyond!
It gets into your heart, it's a feeling all our own
We're back on the throne, with one for the other thumb
All the Steeler ladies (7x), Now put your hands up
Here we go, oh oh ohhh oh, oh oh, oh oh oh (2x)
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
Gonna win it and they're gonna put a ring on it
In the superbowl, the Steelers will be bringin' it
Gonna win it and they're gonna put a ring on it
HERE WE GO!
Info Courtesy of SteelerLadies website
http://steelerladies.com/
PITTSBURGH'S GOING TO THE SUPERBOWL!
Changes
Well I finally made up my mind the other day to chop off all my hair! I have let my hair grow and grow over the past two years mainly because I am afraid of losing it as the Lupus causes some hair loss but it just had gotten to be way too long and way too hard to care for. I took my tush to the local beauty school as my daughter loves the one girl there and she does a beautiful job on hers so figured hey why not! It costs only 5.50 for a shampoo and cut/style so hey how can you go wrong! While they were registering me the teacher said would you consider donating your hair to locks of love and it took me all of 2 seconds to say yes by all means! They measured it and they cut off almost a foot of hair!!!!!!!!!! Who Knew!!!!!!!!!! LOL. Needless to say I feel alot lighter hahaha..if only it worked that way! Ewww tho all that was left was black and white and while it may look good on some people I had naturally dark auburn most of my life so it shook me a bit! I do love the hair cut and it's really easy to take care of and does not get all tangled up in my CPAP machine like it was doing despite the ponytail i would put it in! the end result was that I did not even have to pay for the haircut! Talk about bargains for a good cause! Of course yesterday i promptly went and got some lady clariol and am back to my redheaded self :-)
If you don't know what locks of love is here is a link: http://www.locksoflove.org/
They weave wigs for children who are cancer victims so it was well worth it in my humble opinion! Maybe i will get brave and post a pic but don't count on it..i hate my own pic being taken lol.
K off to bed it's 1am and just talked to my sis Marsi for an hour and think I better hit the bed.
Have a great weekend and if you are a sports fan (wink wink)
They weave wigs for children who are cancer victims so it was well worth it in my humble opinion! Maybe i will get brave and post a pic but don't count on it..i hate my own pic being taken lol.
K off to bed it's 1am and just talked to my sis Marsi for an hour and think I better hit the bed.
Have a great weekend and if you are a sports fan (wink wink)
![]() |
| From Scrappily Yours |
GO STEELERS SUPERBOWL HERE WE COME!
Superbowl XLIII~Sunday February 1st,2009
in Tampa, Florida at Raymond James Stadium
Superbowl will be covered on FOXKick Off time is APPROX 6:18PM ET
The Pittsburgh Steelers and The Arizona Cardinals

The Pittsburgh Steelers and The Arizona Cardinals
Friday, January 30, 2009
Newest Products at Digitals
Here is a peek at the newest products I have put up :-)

CU-Stock Photos -Sky&Beach
CU- Stock Photos - Flowers
Happy Holidaze Dressed Up
now at Digitals $3.00
Happy Holidaze Simple now at Digitals $5.00
CU --STOCK PHOTOS -WINTER
now at Digitals $5.00

CU-Stock Photos -Sky&Beach
Now at Digitals $4.00
CU- Stock Photos - Flowers
Now at Digitals $4.00
All of the stock photos were taken by me with my new digital camera and hopefully you will like the results as much as we have! As always any questions on my products can be sent to me via the Digitals Contact Us form or by PM'g me in the Digitals forum user name is jolene.
Layouts
Just some new layouts I finally am getting to posting! Thanks to the super blogs with Pretty Scrappy and their blog train I got some great Boy quickpages! Will edit when I get back from the doctors tonight as we go yet again to Pittsburgh for dh's doctor appt! JOY oh Joy!

Our soninlaw with his grandkids Bubba and our sweetie Alex
QP by LateNightScraps

Jackson is priceless lol. He is truly a rough and tumble lil guy!
QP by Inspired Mommie Designs

Jack definitely lets his feelings be known on Christmas Day at dinner!
QP by Pretty Scrappy

Our oldest who will be 16 (GASP!!!) this year! He is still my redheaded boy!
QP by Teri's Thing-o-my-jigs

Alex just "aswingin"
QP collaboration by Pretty Scrappy Designers

Sweet baby face Alex back a couple years
QP by Designs by Mel

Our soninlaw with his grandkids Bubba and our sweetie Alex
QP by LateNightScraps

Jackson is priceless lol. He is truly a rough and tumble lil guy!
QP by Inspired Mommie Designs

Jack definitely lets his feelings be known on Christmas Day at dinner!
QP by Pretty Scrappy

Our oldest who will be 16 (GASP!!!) this year! He is still my redheaded boy!
QP by Teri's Thing-o-my-jigs

Alex just "aswingin"
QP collaboration by Pretty Scrappy Designers

Sweet baby face Alex back a couple years
QP by Designs by Mel
Wednesday, January 28, 2009
Good News and eh news
Well the good news is they have finally given Alex a diagnosis and PTL it is NOT cancer ...he apparently has Juvenile Rheumatoid Arthritis which is very painful and can be debilitating but he is responding well to meds so all is not as terrible as we had been originally told! Thanks to everyone for your prayers and emails --they mean more than we can we say!
I am going to be redoing both this blog and my site over the next few weeks and try to get myself back in some sort of normal routine as much as my health will allow! Bear with me if you see bleeps and bumps along the way lol.
Happy over the hump day from SNOWY Western PA! Have a look at our errrrrr not so lovely weather!
Friday, January 09, 2009
Devasting News
Well it has been awhile since I updated this hasn't it! We got some devasting news that our precious 6yr old step greatgrandson has been diagnosed with cancer this morning...we are all in shock, in tears, in anger and feel totally devastated! I know that there have been great and wonderful strides in the care of children with cancer but NOT enough from what I have read tonight. I don't know yet exactly what type of cancer it is nor the dr's plan of treatment as they were on their way home from Pittsburgh the last I spoke with my daughter. I just need to ask any and all of you to put him and the family in all your prayers, your blessings, your thoughts or what you happen to believe in! His name is Alex and is such a joy to everyone and we could not love him more if he was a true greatgrand. He calls me Nana, he calls my daughter grandma..he IS family maybe not by blood but by love. Will update more later when I can think clearer and not cry quite so much.
Sunday, November 16, 2008
Yummy Tried Recipe
I was watching Food Network this morning all snuggled in my warm bed since it is snowing here and she made these Pumpkin Bars that made my mouth water for some reason so I went and got the recipe from her show and they are delish! If you like pumpkin you will love them!
Here is the recipe from her site
Pumpkin Bars
Recipe courtesy Patty Ronning as adapted by Paula Deen
Prep Time: 15 min
Cook Time: 30 min
Serves: 48 small bars or 24 larger bars
Ingredients
Bars:
4 eggs
1 2/3 cups granulated sugar
1 cup vegetable oil
15-ounce can pumpkin
2 cups sifted all-purpose flour
2 teaspoons baking powder
2 teaspoons ground cinnamon
1 teaspoon salt
1 teaspoon baking soda
Icing:
8-ounce package cream cheese, softened
1/2 cup butter or margarine, softened
2 cups sifted confectioners' sugar
1 teaspoon vanilla extract
Directions
Preheat the oven to 350 degrees F.
Using an electric mixer at medium speed, combine the eggs, sugar, oil and pumpkin until light and fluffy. Stir together the flour, baking powder, cinnamon, salt and baking soda. Add the dry ingredients to the pumpkin mixture and mix at low speed until thoroughly combined and the batter is smooth. Spread the batter into a greased 13 by 10-inch baking pan. Bake for 30 minutes. Let cool completely before frosting. Cut into bars.
Using an electric mixer at medium speed, combine the eggs, sugar, oil and pumpkin until light and fluffy. Stir together the flour, baking powder, cinnamon, salt and baking soda. Add the dry ingredients to the pumpkin mixture and mix at low speed until thoroughly combined and the batter is smooth. Spread the batter into a greased 13 by 10-inch baking pan. Bake for 30 minutes. Let cool completely before frosting. Cut into bars.
To make the icing:
Combine the cream cheese and butter in a medium bowl with an electric mixer until
smooth. Add the sugar and mix at low speed until combined. Stir in the vanilla and mix again. Spread on cooled pumpkin bars.
smooth. Add the sugar and mix at low speed until combined. Stir in the vanilla and mix again. Spread on cooled pumpkin bars.
Tuesday, November 11, 2008
Holiday Giggle
I had to share this one! was browsing around for some holiday gifts for my family and came across these holiday napkins and they just struck my funny bone!!!!!! Sounds like something one of my grandchildren would have come up with lol. Found them at The Weed Patch -how cute! They do have some other wonderful holiday gift and party items!
While we were on vacation I always had Daisy Cottage someplace in the back of my mind as I saw homes for sale and when we visited B&B Antiques! I lay you odds Daisy Cottage owner Kim and I could have spend hours there if she had been around!!!! I have come to the conclusion while I may never have my own cottage I can still find goodies that will remind me of them and so with that in mind I intend to redo most of my townhouse as time goes by!!! I took some photos of the outside of B&B but totally forgot i had my camera inside duhhhhhhhhhhhh me!!!! Will post them as soon as i resize them as they are a bit too big for here.
Well I am finally settling back in after my vacation hooray!
Things really changed while I was gone as first 3Scrapateers was closing then not and is now under new owners. I have looked and corresponded extensively over the past few days with Barbara who is our new co owner at 3S and have made a decision this morning to stay with 3Scrapateers and see where it leads. It looks like it will be a new adventure and I am sure I will learn new things along the way as well. I know that if it does not work out I can always leave but am willing at this juncture to give it a go ...at my age I can still learn something new! LOL.
The time with the original girls of 3S was such a joy and they are family in my heart and know that it was not an easy choice for them to make! It takes alot of time, work and energy to run any site and one such as 3S I am sure really took a huge amount of all of that! I hope they know how loved they are and how much any of us that worked with them appreciated them each day.
Okay off to figure out some new kits, get ready to go out for a long lovely dinner with my hubby, son and daughter in law at the Oakhurst Tea Room this evening to celebrate their anniversary and both their birthdays. We have not been there in ages and we are really looking forward to dinner for it is always yum yum yummy!
Things really changed while I was gone as first 3Scrapateers was closing then not and is now under new owners. I have looked and corresponded extensively over the past few days with Barbara who is our new co owner at 3S and have made a decision this morning to stay with 3Scrapateers and see where it leads. It looks like it will be a new adventure and I am sure I will learn new things along the way as well. I know that if it does not work out I can always leave but am willing at this juncture to give it a go ...at my age I can still learn something new! LOL.
The time with the original girls of 3S was such a joy and they are family in my heart and know that it was not an easy choice for them to make! It takes alot of time, work and energy to run any site and one such as 3S I am sure really took a huge amount of all of that! I hope they know how loved they are and how much any of us that worked with them appreciated them each day.
Okay off to figure out some new kits, get ready to go out for a long lovely dinner with my hubby, son and daughter in law at the Oakhurst Tea Room this evening to celebrate their anniversary and both their birthdays. We have not been there in ages and we are really looking forward to dinner for it is always yum yum yummy!
Thursday, November 06, 2008
Luceeeeeeeee I am homeeeeeeeeee lol
Well we are back from our much needed R&R errrrrrr vacation :-) ... We extended it a bit longer than we thought we would but to be honest I am extremely happy we did.
We moved from one hotel that we love called the Captain's Quarters up to another one called the Grande Shores and we had a groundfloor efficiency that I could just walk out the patio into the outdoor pool! We were lucky to have wonderful weather most of the time and I came home feeling better than when I left. The pneumonia seems to have also have gone away save a few "rattlings" yet when I lay too flat but my old bones feel wonderful!
For the first time in 7 years I was able to walk on the beach! That alone is a major accomplishment..many thanks to percocet lol. I do understand my dr not wanting me on it all the time due to its addictive properties but I would give alot to feel this way all the time. I got to sit down on the floor and actually play with our Jack which I normally cannot do and puttered in my yard! I am down to my last two doses of it but I am going to have a very serious chat with my doctor on what we can do to keep me feeling this way rather than slipping back into constant pain mode. Cross your fingers!
Took tons and tons of pictures so as soon as i figure out my wonderful new digital camera uploading them to my computer will post some! Also had a great day with my son and his family for his birthday yesterday and they had all his girls and Jack so it was a super celebration in my eyes. His Em is still going thru much difficulty struggling between where she wants to really live so please keep her in your prayers that she can come to a good choice for her and that she stays safe while with her mother for that whole situation is one that no child should have to endure. She will be 13 next month is old enough to choose now and says she wants with her dad but she has such a fear of her mom and hurting her mom that she waffles alot. She knows her dad and stepmom love her as do her sisters and brother but she naturally has the fear of hurting either parent even tho her mother is well shall we say less than a mother should be. i try NOT to say alot negative about her mother but one day I may just let loose. I do not want Em to feel we pressure her for that would be wrong too but i worry about her safety emotionally and physically constantly.
ok enuf rambling. off to catch up..it will take me days just to read mail lol and I see some interesting scrapbooking mail so stay tuned!!!!!!!!!!!!!!
Hugs and blessings
Hope you had a happy and fun halloween if you celebrate it!
Jo
We moved from one hotel that we love called the Captain's Quarters up to another one called the Grande Shores and we had a groundfloor efficiency that I could just walk out the patio into the outdoor pool! We were lucky to have wonderful weather most of the time and I came home feeling better than when I left. The pneumonia seems to have also have gone away save a few "rattlings" yet when I lay too flat but my old bones feel wonderful!
For the first time in 7 years I was able to walk on the beach! That alone is a major accomplishment..many thanks to percocet lol. I do understand my dr not wanting me on it all the time due to its addictive properties but I would give alot to feel this way all the time. I got to sit down on the floor and actually play with our Jack which I normally cannot do and puttered in my yard! I am down to my last two doses of it but I am going to have a very serious chat with my doctor on what we can do to keep me feeling this way rather than slipping back into constant pain mode. Cross your fingers!
Took tons and tons of pictures so as soon as i figure out my wonderful new digital camera uploading them to my computer will post some! Also had a great day with my son and his family for his birthday yesterday and they had all his girls and Jack so it was a super celebration in my eyes. His Em is still going thru much difficulty struggling between where she wants to really live so please keep her in your prayers that she can come to a good choice for her and that she stays safe while with her mother for that whole situation is one that no child should have to endure. She will be 13 next month is old enough to choose now and says she wants with her dad but she has such a fear of her mom and hurting her mom that she waffles alot. She knows her dad and stepmom love her as do her sisters and brother but she naturally has the fear of hurting either parent even tho her mother is well shall we say less than a mother should be. i try NOT to say alot negative about her mother but one day I may just let loose. I do not want Em to feel we pressure her for that would be wrong too but i worry about her safety emotionally and physically constantly.
ok enuf rambling. off to catch up..it will take me days just to read mail lol and I see some interesting scrapbooking mail so stay tuned!!!!!!!!!!!!!!
Hugs and blessings
Hope you had a happy and fun halloween if you celebrate it!
Jo
Tuesday, October 07, 2008
Sick Humor
In case ya all didn't notice I am not having a good few weeks/months healthwise for myself nor several of my family members! I have added some health links to the sidebar------------>
so feel free to check them out if you or a loved one suffers from any of them.
This is a "gotta laugh" from But you don't look sick website and just have to share it!
letter from your chronic condition and a reply. Sometimes you just have to laugh!
--------------------------------------------------------------------------------------
To whom it may concern:
Congratulations! You have been selected to be the host for (any chronic condition -- RA, FM, lupus, MS, you name it). You will begin to experience many or all of these symptoms -- and may even deal with several of them at the same time.
--Pain can be anywhere you can imagine. We are equal opportunity destroyers, therefore we will choose many places for you to experience pain. We have even devised many different types of pain -- it could be aching, stabbing, throbbing, tingling, burning, gripping, or cramping. We are continually improving our repetoire of pain categories, so updates are to be expected.
--Dizziness. This can be accompanied by nausea, mental confusion, ringing in the ears, vomiting, loss of coordination, and sensations of spinning, rocking, or shaking. We try to simulate the experience of riding a never-ending roller coaster to satisfy your adventurous spirit. No safety harnesses required, and you have no choice of when the coaster ride starts,ends, or how fast it goes.
--Extreme fatigue (Now remember, this is not just being "tired". We will suddenly "pull your plug", so to speak, and you will have NO energy at all. Even dressing or taking a shower will be too daunting of a task for you to complete. And because we like surprises, we will NOT give you any advance warning, so you could be in the middle of the grocery store, at work, playing with you kids, or trying to clean the house.)
--Poor balance, lack of coordination. Let's just say you may walk or talk like you are drunk -- even if you haven't had any alcohol recently. And for those of you who have never indulged in alcohol, you are now going tounderstand what it is like to be drunk and to have a hangover.
--Forgetting, losing, dropping things. These are just a few of the perks of your condition. You will learn to expect them, but never to enjoy them.
In addition to the symptoms above, we also want to eliminate some things from your crowded lifestyle. Here are a few of the things which will be taken away from you now that you are chosen to have a chronic condition:
The ability to stand or walk for longer than 15 minutes without experiencing pain in you feet, ankles, knees, or legs.
Tthe ability to sit for longer than 10 minutes without experience cramping in your legs and butt, or shooting pains in your back.
The ability to complete any task which requires more than 10 minutes of concentration, multi-step activities or long-term projects will take 2-3 times longer then average.
The ability to play and run with your children like you did before.
The ability to have a "normal" social life.
The ability to accumulate sick days at work/ school to earn the perfect attendance bonus.
As indicated previously, this condition is in constant flux and more symptoms will be added as we deem necessary. There is no warranty guarantee, technical support, or customer service available.
Sincerely,Your chronic condition
_________________________________________________________________
Dear My chronic condition:
I would like to clarify that, while you may wreak havoc on my body, and maybe even confuse my mind -- you cannot have my heart or my soul. You cannot have my faith, my hope, or my love. There are some good things thatyou have given me, things I never could have experienced had you not come to possess my body.
You have given me:-- strengthened prayer life and increased dependence on God's grace and strenth, rather than my own-- renewed friendship with strong, close, true friends.-- appreciation for every precious moment I am given. A gift that is sometimes lost on the "healthy".-- growth in character, perseverance, and hope.-- inspiration for to help others.-- more compassion for others who are suffering.-- better knowledge of my own body & health.-- a reason to eat more nutritiously and take care of myself.-- reasons to rest when I need it.
You see, you will not find me an agreeable host. I will fight you, I will not give up. On bad days, I will take care of myself. On the good days, I will take advantage of every precious moment. You have thrown some obstacles in my life's journey, but I will go over them or around them, no matter what it takes. In fact, while I am overcoming them, I will stop for a moment to reflect upon the mountain I am climbing, plant a few seeds and then continue on. I will learn and grow from this experience and help others.
Sincerely,ME
Article written by Brandi Lasnick, © 2007 butyoudontlooksick.com
so feel free to check them out if you or a loved one suffers from any of them.
This is a "gotta laugh" from But you don't look sick website and just have to share it!
letter from your chronic condition and a reply. Sometimes you just have to laugh!
--------------------------------------------------------------------------------------
To whom it may concern:
Congratulations! You have been selected to be the host for (any chronic condition -- RA, FM, lupus, MS, you name it). You will begin to experience many or all of these symptoms -- and may even deal with several of them at the same time.
--Pain can be anywhere you can imagine. We are equal opportunity destroyers, therefore we will choose many places for you to experience pain. We have even devised many different types of pain -- it could be aching, stabbing, throbbing, tingling, burning, gripping, or cramping. We are continually improving our repetoire of pain categories, so updates are to be expected.
--Dizziness. This can be accompanied by nausea, mental confusion, ringing in the ears, vomiting, loss of coordination, and sensations of spinning, rocking, or shaking. We try to simulate the experience of riding a never-ending roller coaster to satisfy your adventurous spirit. No safety harnesses required, and you have no choice of when the coaster ride starts,ends, or how fast it goes.
--Extreme fatigue (Now remember, this is not just being "tired". We will suddenly "pull your plug", so to speak, and you will have NO energy at all. Even dressing or taking a shower will be too daunting of a task for you to complete. And because we like surprises, we will NOT give you any advance warning, so you could be in the middle of the grocery store, at work, playing with you kids, or trying to clean the house.)
--Poor balance, lack of coordination. Let's just say you may walk or talk like you are drunk -- even if you haven't had any alcohol recently. And for those of you who have never indulged in alcohol, you are now going tounderstand what it is like to be drunk and to have a hangover.
--Forgetting, losing, dropping things. These are just a few of the perks of your condition. You will learn to expect them, but never to enjoy them.
In addition to the symptoms above, we also want to eliminate some things from your crowded lifestyle. Here are a few of the things which will be taken away from you now that you are chosen to have a chronic condition:
The ability to stand or walk for longer than 15 minutes without experiencing pain in you feet, ankles, knees, or legs.
Tthe ability to sit for longer than 10 minutes without experience cramping in your legs and butt, or shooting pains in your back.
The ability to complete any task which requires more than 10 minutes of concentration, multi-step activities or long-term projects will take 2-3 times longer then average.
The ability to play and run with your children like you did before.
The ability to have a "normal" social life.
The ability to accumulate sick days at work/ school to earn the perfect attendance bonus.
As indicated previously, this condition is in constant flux and more symptoms will be added as we deem necessary. There is no warranty guarantee, technical support, or customer service available.
Sincerely,Your chronic condition
_________________________________________________________________
Dear My chronic condition:
I would like to clarify that, while you may wreak havoc on my body, and maybe even confuse my mind -- you cannot have my heart or my soul. You cannot have my faith, my hope, or my love. There are some good things thatyou have given me, things I never could have experienced had you not come to possess my body.
You have given me:-- strengthened prayer life and increased dependence on God's grace and strenth, rather than my own-- renewed friendship with strong, close, true friends.-- appreciation for every precious moment I am given. A gift that is sometimes lost on the "healthy".-- growth in character, perseverance, and hope.-- inspiration for to help others.-- more compassion for others who are suffering.-- better knowledge of my own body & health.-- a reason to eat more nutritiously and take care of myself.-- reasons to rest when I need it.
You see, you will not find me an agreeable host. I will fight you, I will not give up. On bad days, I will take care of myself. On the good days, I will take advantage of every precious moment. You have thrown some obstacles in my life's journey, but I will go over them or around them, no matter what it takes. In fact, while I am overcoming them, I will stop for a moment to reflect upon the mountain I am climbing, plant a few seeds and then continue on. I will learn and grow from this experience and help others.
Sincerely,ME
Article written by Brandi Lasnick, © 2007 butyoudontlooksick.com
Saturday, September 20, 2008
New products
FLORA DORA SETS
FloraDora Full ScrapKit at 3S and Digitals
FloraDora Alpha's at 3S and Digitals --comes in pink, green or blue and also a copper set.
FLORADORA FULL KIT 3S
FLORADORA ALPHA PINK 3S
FLORADORA GREEN 3S
FLORADORA BLUE 3S
FLORADORA COPPER 3S
Family Is Scrapkit at 3s and Digitals and also just a paperpack as well
FAMILY IS SCRAPKIT DIGITALS
FAMILY IS ALPHA DIGITALS
FAMILY IS PAPERPACK ONLY 3S
HnH at 3Scrapateers
Well I know it's been a bit since I added new products but did get around to some this past week or two so here a preview of what's happening.
At 3 Scrapateers I have the HalfNHalf this upcoming week on the 23rd. Since we may not be home from Pittsburgh in time Carla has offered to stand in for me if I cannot make it but please stop by and yak a little and maybe grab a free goodie or two! For details on the HnH you can go to HERE
LOL ok next installment
Now where was I? The comp dr here finally did call back yesterday morning and we have an appt with another specialist down in Pittsburgh on Tuesday..nothing like short notice is there since we have to gather all his xrays, ct scans and mri's by then! Luckily we already were going to Pittsburgh that day for the VA dr appt in the afternoon so at least that saves us the gas for an extra trip! Small blessing at least :-)
Daughter dear's other half is also being sent to Pittsburgh get this ...one dr on Tuesday and one on Wednesday and her adult step daughter is in the hospital here for ear surgery here to clear up an infection that has been ongoing for months before they send her to Pittsburgh to a specialist. Sometimes I wonder why our local dr's cannot be just as qualified as those 2 hours away sigh. We are taking DD other half to his Weds appt but can't take him with us Tues as it's in a totally different area and at the same time as our appointments! Ever feel like you are going in circles? Come to my house lol we can show you!!!!!!
I stopped at the store this afternoon and didn't you know there was a lady at the table outside the one store collection donations for the Lupus foundation. We sat and chatted awhile since I have it and her daughter was dx'd 4 years ago we had alot to yak about. I sometimes forget there are others here that do have and really should look into their support system locally. I have been lucky with my online support groups and venting here helps relieve the stress that can trigger outbursts but am actually blessed that mine has been under control this long. They said about 10 years is the max for that and I am about at 8 now so kinda keep waiting for the other shoe to drop but knock on wood have been lucky so far.
Our Jackson will be turing 1 next week! It does not seem possible bless his wee heart! He is such a gem and a happy little guy!!!! I remember when they were all this age from our precious CJ who is now almost 16(where has the time gone)down thru Chrisser, and Ems to the next group of Liv and Cat and now miss wiggle butt and Jack! Each of them is priceless in this Nana's eyes and of course totally perfect lol. If it were not for them sometimes I really think I would have given up back when they first dx'd me but they keep me wanting to be around for a long time and to know they are grown and safe and happy. Grandchildren are the biggest blessings in life!!!!
Daughter dear's other half is also being sent to Pittsburgh get this ...one dr on Tuesday and one on Wednesday and her adult step daughter is in the hospital here for ear surgery here to clear up an infection that has been ongoing for months before they send her to Pittsburgh to a specialist. Sometimes I wonder why our local dr's cannot be just as qualified as those 2 hours away sigh. We are taking DD other half to his Weds appt but can't take him with us Tues as it's in a totally different area and at the same time as our appointments! Ever feel like you are going in circles? Come to my house lol we can show you!!!!!!
I stopped at the store this afternoon and didn't you know there was a lady at the table outside the one store collection donations for the Lupus foundation. We sat and chatted awhile since I have it and her daughter was dx'd 4 years ago we had alot to yak about. I sometimes forget there are others here that do have and really should look into their support system locally. I have been lucky with my online support groups and venting here helps relieve the stress that can trigger outbursts but am actually blessed that mine has been under control this long. They said about 10 years is the max for that and I am about at 8 now so kinda keep waiting for the other shoe to drop but knock on wood have been lucky so far.
Our Jackson will be turing 1 next week! It does not seem possible bless his wee heart! He is such a gem and a happy little guy!!!! I remember when they were all this age from our precious CJ who is now almost 16(where has the time gone)down thru Chrisser, and Ems to the next group of Liv and Cat and now miss wiggle butt and Jack! Each of them is priceless in this Nana's eyes and of course totally perfect lol. If it were not for them sometimes I really think I would have given up back when they first dx'd me but they keep me wanting to be around for a long time and to know they are grown and safe and happy. Grandchildren are the biggest blessings in life!!!!
Friday, September 19, 2008
What's New or Where have I been?
Well despite the best laid plans to post everyday it seems a whole month has gone by again! An old dear friend once told me "Jojo if your life were a movie it would be a soap opera!" LOL how right she was! It seems things are never dull for even a day around our household! With that said will just have to fill you in on bits and pieces as I go.
Dh's knee injury is NOT improving at all so they are sending him to a specialist in Pittsburgh ....however we cannot just call and make an appointment like we can around here..nooooooo that would be too simple! We had to have all his records sent to this particular dr and he reviews it and then decides if he will deign to see us! Go figure! It's now 3 weeks since all the info was sent to him and despite numerous calls from us and from the local dr this dr there has not made a final decision! Now I grant you Dr's are busy people but ya know what..we have lives too and our time is just as precious and valuable as his is! I KNOW he is a wonderful specialist but you would think he could take some point in 3 weeks to make one simple phone call! We got a call yesterday from someone there who dh did not get his name ugh and was told to call scheduling to make an appt. SOOOOOOOOO i call the number he gave dh and they have NO CLUE who to schedule him with and will not make an appt with us until we find out. I called the number back to the person who called and of course nobody can help as " we have hundreds of employees for about 60 dr's here and if you cannot say who called we cannot help you!" So we are in a vicious ring around the rosie! One lovely girl did FINALLY take pity on my frustration and spoke with the secretary of the Dr we were requesting and she said she will investigate it as the Dr. was still working on dh and had not made his final decision so wants to know too who it was that called and why. At any rate she is SUPPOSED to call me back today..we shall see if that happens!
DD is still in pain and we had a trip to the local ER AGAIN this week but at least this time they gave us a better idea of what is causing her so much abdominal and back pain..it seems she appears to ahve some HUGE cysts on the ovaries they left after her hysterectomy so we will be trapsing off to the GYN dr again for her!
Dh had his annual checkup with his regular dr ( he normally sees the dr's at VA hospital since he has no insurance) and our reg dr was NOT HAPPY!!!!!! Dh's blood pressure was so low they could not get it standing and when laying down or sitting they had one heck of a time. It turns out that the VA dr that is no longer with VA had him on TOO MANY blood pressure meds at one time!!!!!! The woman was nuts. We told her before there was something not right and all she did was add more meds!!!!!!! Talk about dangerous and wasteful! Our dr took him off the latest one and we had a bp recheck yesterday(two weeks time passed) and it appears to be back in normal range altho the resident who checked him said he thought it was a little HIGH lol ! We are about ready to smack them all and wonder how we can have so many differing opinions within 2 months!!!!!!!!!!!! It is totally absurd!!!!!! We saw the new VA dr last week and told him what our dr did and he was okay with it and said obviously our dr knows what he is doing but agreed that dh's color was very pasty and white. He felt we should increase his diabetes meds going by their blood work and I said NO WAY until I talk to our family dr. Our family dr hit the roof again and said dh 's bloodwork is marvelous and he is doing VERY well with his diabetes control and there is no need to double meds again! I swear sometimes VA does it just to make money or something. It's just a mess! Without health insurance dh doesn't have alot of choice but half the time I am afraid they will do more harm than good for him!
My sister is coming up this way the weekend of my birthday HOORAY!!!!! I haven't had any of my siblings here for my bday in years so it will be wonderful!!!!! The bad news is our oldest sister is not doing well and her malignancy is non operable which means she once again must go thru intensive chemo which she is dreading. Brother dear is going to see her this weekend to convince her she needs to do it but I know that there is a part of her that does not want to go thru it yet again. We love her and want her with us as long as possible and I pray she listens to him as they are very close. While I do not see her often she is my sister and I love her and worry about her. Please keep her in your prayers and thoughts!
Let's see what else drama wise I can pass on lol
Hmmmmmm time out for now..will catch up a bit later in the day with hopefully more fun type stuffers. I just needed a vent for now THanks for reading!
Dh's knee injury is NOT improving at all so they are sending him to a specialist in Pittsburgh ....however we cannot just call and make an appointment like we can around here..nooooooo that would be too simple! We had to have all his records sent to this particular dr and he reviews it and then decides if he will deign to see us! Go figure! It's now 3 weeks since all the info was sent to him and despite numerous calls from us and from the local dr this dr there has not made a final decision! Now I grant you Dr's are busy people but ya know what..we have lives too and our time is just as precious and valuable as his is! I KNOW he is a wonderful specialist but you would think he could take some point in 3 weeks to make one simple phone call! We got a call yesterday from someone there who dh did not get his name ugh and was told to call scheduling to make an appt. SOOOOOOOOO i call the number he gave dh and they have NO CLUE who to schedule him with and will not make an appt with us until we find out. I called the number back to the person who called and of course nobody can help as " we have hundreds of employees for about 60 dr's here and if you cannot say who called we cannot help you!" So we are in a vicious ring around the rosie! One lovely girl did FINALLY take pity on my frustration and spoke with the secretary of the Dr we were requesting and she said she will investigate it as the Dr. was still working on dh and had not made his final decision so wants to know too who it was that called and why. At any rate she is SUPPOSED to call me back today..we shall see if that happens!
DD is still in pain and we had a trip to the local ER AGAIN this week but at least this time they gave us a better idea of what is causing her so much abdominal and back pain..it seems she appears to ahve some HUGE cysts on the ovaries they left after her hysterectomy so we will be trapsing off to the GYN dr again for her!
Dh had his annual checkup with his regular dr ( he normally sees the dr's at VA hospital since he has no insurance) and our reg dr was NOT HAPPY!!!!!! Dh's blood pressure was so low they could not get it standing and when laying down or sitting they had one heck of a time. It turns out that the VA dr that is no longer with VA had him on TOO MANY blood pressure meds at one time!!!!!! The woman was nuts. We told her before there was something not right and all she did was add more meds!!!!!!! Talk about dangerous and wasteful! Our dr took him off the latest one and we had a bp recheck yesterday(two weeks time passed) and it appears to be back in normal range altho the resident who checked him said he thought it was a little HIGH lol ! We are about ready to smack them all and wonder how we can have so many differing opinions within 2 months!!!!!!!!!!!! It is totally absurd!!!!!! We saw the new VA dr last week and told him what our dr did and he was okay with it and said obviously our dr knows what he is doing but agreed that dh's color was very pasty and white. He felt we should increase his diabetes meds going by their blood work and I said NO WAY until I talk to our family dr. Our family dr hit the roof again and said dh 's bloodwork is marvelous and he is doing VERY well with his diabetes control and there is no need to double meds again! I swear sometimes VA does it just to make money or something. It's just a mess! Without health insurance dh doesn't have alot of choice but half the time I am afraid they will do more harm than good for him!
My sister is coming up this way the weekend of my birthday HOORAY!!!!! I haven't had any of my siblings here for my bday in years so it will be wonderful!!!!! The bad news is our oldest sister is not doing well and her malignancy is non operable which means she once again must go thru intensive chemo which she is dreading. Brother dear is going to see her this weekend to convince her she needs to do it but I know that there is a part of her that does not want to go thru it yet again. We love her and want her with us as long as possible and I pray she listens to him as they are very close. While I do not see her often she is my sister and I love her and worry about her. Please keep her in your prayers and thoughts!
Let's see what else drama wise I can pass on lol
Hmmmmmm time out for now..will catch up a bit later in the day with hopefully more fun type stuffers. I just needed a vent for now THanks for reading!
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